I am joined today on Healthcare Unfiltered by Stephanie Chuang, a remarkable patient advocate, survivor of non-Hodgkin lymphoma, and the visionary behind The Patient Story, a curator of patients stories and resources for people diagnosed with cancer.
Stephanie shares her journey from a surprise diagnosis to the genesis and execution of The Patient Story during her chemotherapy treatment. Learn how she garnered viewers on her website and YouTube channel, driven by her mission to curate information and resources to inspire hope. She delves into the impact of social media on patient understanding and emotional management, explores the dynamics in the physician’s office that often leave patients dissatisfied, and uncover the meticulous process of choosing and vetting stories featured on her platform.
Dr. Simrit Parmar, founder of Cellenkos, joins the show to discuss her journey from the lab to the biotech startup world, detailing the inspiration behind launching her company, the challenges of securing funding, and the resilience required to overcome rejections. She shares insights into Cellenkos’ lead product, its progress toward market approval, and the rigorous
Carol Rausch—a healthcare professional, cancer researcher, and former patient with lymphoma—shares how her journey from researcher to patient transformed her understanding of medical language. She discusses the impact of word choice on patients, why certain battle and war metaphors can be harmful, and how language used in clinical settings differs from what resonates with those
Drs. David Braun and Toni Choueiri join to discuss a groundbreaking Nature study on a personalized neoantigen vaccine for adjuvant renal cell carcinoma. They explore the inspiration behind the trial, how the vaccine was developed and administered, and its safety profile. The conversation also covers patient outcomes after 3-4 years, including immune responses and disease
